OasisLMS

The teenage patient with a developmental epileptic encephalopathy (DEE) sits at the intersection of pediatric epilepsy and adult epilepsy. They are a unique group which have often missed the extensive genetic evaluations that pediatric epileptologists do now for our young children with a DEE. They are transitioning to an adult world that are not used to handling them since they carry mutations only recently discovered and may have not survived into adulthood in the past. This webinar will discuss some of these unique problems with a panel of experienced pediatric epileptologists that do extensive care of these patients.

Learning Objectives
Upon completion of this activity, participants will be able to:

1. Describe the unique problems of a teenager with developmental epileptic encephalopathy
2. Review the special issues that face the patient and family as well as the adult epileptologist as the teenage DEE patient transitions care
3. Discuss the barriers that epileptologists have in utilizing the unique medicines used in DEEs and how to overcome these barriers.
4. Describe some of the newer precision therapies that have arrived for these patients.

Faculty 

Fernando Galan, MD
Fernando Galan, MD is a pediatric epileptologist with Nemours Children’s Health in Jacksonville, Florida and is the Medical Director of the Epilepsy Center, the Ketogenic Diet Program, and the Brunell Family Children’s Neuro-Diagnostic Center at Wolfson Children’s Hospital. He graduated medical school and completed a Child Neurology residency at the Medical University of South Carolina. After residency, he completed two years of additional training in neurophysiology and the management of drug resistant epilepsy including surgical options at Nicklaus Children's Hospital (Miami, Fl).


Angel W. Hernandez, MD
Angel W. Hernandez, MD currently serves as the Division Chief of Neurology, Program Director of the Pediatric Epilepsy Fellowship program and Medical Director of the International Program at Johns Hopkins All Children’s Hospital St. Petersburg Florida, he’s also Professor (PAR) of Clinical Neurology at Johns Hopkins University School of Medicine.


Anup D. Patel, MD, FAAN, FAES, FCNS

Anup D. Patel, MD, FAAN, FAES, FCNS is the Associate Chief Quality Officer in the Center for Clinical Excellence at Nationwide Children’s Hospital. He is a Professor in Clinical Pediatrics and Neurology at the Ohio State University College of Medicine. He is board certified in neurology with special qualifications in child neurology. In addition, he is board certified in epilepsy and clinical neurophysiology. He is the Chair of the Quality Committee for the American Academy of Neurology (AAN). He is a member of the Board of Directors for the AAN Institute. He has interests in child neurology, pediatric epilepsy, and quality improvement. Clinically, he sees patients with non-surgical treatment resistant epilepsy. Academically, he has over 100 peer reviewed publications.

Moderator

Parrish Winesett, MD
Parrish Winesett is an Associate Professor of Pediatrics and Director of the Pediatric Epilepsy Center at the University of Florida. He has a special interest in the care of developmental epileptic encephalopathies.