Ask the Expert On Demand Webinar: Caring for All - LGBTQ+ Informed Care in Epilepsy-ATEW001

Video Transcription

Video Summary

The webinar “Caring for All: LGBTQ+ Informed Care and Epilepsy” reviews disparities and practical strategies for inclusive epilepsy care. Dr. Emily Johnson outlines key terms (SGM, TGD, SOGI) and summarizes evidence that transgender and sexual/gender minority people have higher mortality, much higher suicide attempt rates, and elevated rates of epilepsy and other neurologic conditions. National survey data suggest epilepsy prevalence is about twice as high in SGM individuals, with worse mental health, higher poverty, lower likelihood of feeling respected by clinicians, and poorer seizure control (less seizure freedom, more frequent seizures). Contributors may include minority stress, access barriers, stigma, and medication–hormone interactions. Clinically, estrogen can lower lamotrigine levels, and enzyme-inducing anti-seizure medications can reduce estrogen/testosterone, potentially affecting gender-affirming therapy; higher estrogen doses used in gender-affirming care may also influence seizures. Dr. Rodrigo Zepeda presents cases emphasizing avoiding assumptions (pronouns, partners, reproductive potential, organ inventory), preventing “trans broken arm syndrome” (misattributing symptoms to gender identity), and addressing stress and support systems, including how coming out can worsen or relieve anxiety and seizure control. The speakers also discuss documentation and legal concerns around gender-affirming care, the need for more research, and available AES/DEI resources.

Keywords

LGBTQ+ informed care

epilepsy disparities

sexual and gender minority (SGM) health

transgender and gender diverse (TGD) patients

SOGI data collection

minority stress and stigma

anti-seizure medication hormone interactions

gender-affirming hormone therapy

inclusive clinical communication and pronouns